im Dave, i used to be a regular here. i had moved from California where i was living on my boat, at 9ft elevation, moved to southeastern Utah at 5552 ft elevation. ive had congestive heart failure since 2014, and due to firefighting and my job as a plumber, i breathed some not so good things. when i got up here, i began to have issues breathing, then i got bacterial pneumonia for the 4th time since april of 2019. this time my new dr was convinced it was "just COPD" and didnt treat me for the pneumonia. id gotten sick the week of thanksgiving 2021,on febuary 1st 2022,id fallen and broken my left wrist, at the ER, the attending dr noticed i was having issues breathing, and did a bunch of testing, i had walking pneumonia now. lol. xrays also showed a kidney stone that they measure as 7/8ths of an inch diameter, but its thin, dr described it as a skipping stone, its lodged at the opening from the kidney at the uritor (the tube out of the kidney to the bladder) and it moves as a flapper valve.
i went to a large hospital in salt lake city for the pre-op work up and was to have surgery two days later.my oxygen was at 53%, and my blood pressure was really low. the drs then did a new exam, and found i had an enlarged heart and my left lung is 60% non-functioning. and my right lung is 30% non functioning. on july 13th 2022, they told me i need both lungs and my heart transplanted, but that i wont be put on the wait list as i have something called cor pulmonale. its non reversable, and terminal. only 30% of patients live 5 years from diagnosis.id been doing ok, but in oct of 2023, they changed one of my meds from 12.5mgs, to 10mgs, but somewhere along the line, it got changed to 100mgs, no one told me there was going to be a change and the pharmacy didnt say anything.i dont read every bottle i get unless its a new one ive never taken (im on 15 daily meds btw) . i will from now on though. i started getting "sick" before christmas, just lethargic,dizzy,sleeping all the time, could just barely get out of bed. wasnt eating and so on. i have AFIB and a heart murmur as it is, and my heart rate (pulse) was hitting 160. they put me on a heart monitor for 7 days.it took more than two weeks to get the results. i got a call from the nurse and i then had a telehealth visit with my APRN, she told me about the med screw up. then told me my heart rates were at 28 sustained at times, and it spiked to 225 three times. with the lowest having been 18 beats perminute. the reason it took so long to get the results was that boston scientific couldnt beleive the results, buyt instead of letting my cardiologist know they just recalculated things. i could very well have died. the APRN had taken the results etc to the group of cardiologists and they as a group dont understand why i didnt pass away during all of that. so low i should have passed away, to so high my already stressed heart should have just exploded.
so i just wanted to share. ive not been on here much and this is why.im feeling much better now that my meds have been regulated again. but who knows what stupidness may happen in the future huh? Dave
Originally Posted by Daube
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